Planning for the future – For you

Applying for Benefits – Disability allowance

If you have a physical or mental disability you may be entitled to an allowance which helps with extra costs of having this disability and to help you live more independently.  These include:  Attendance Allowance, Personal Independent Payments or Disability Living Allowance.

Support in applying for benefits: Citizens Advice Sheffield Call:  0808 278 7820

For pension aged benefits: Age UK Sheffield – Call:  0114 250 2850

This Is Me / All About Me

It is really good for people in health and social care to understand who you are and what you need so that they can keep you well and treat you the way you would like to be treated.

By filling out either the This Is Me or All About Me form it can help anyone supporting you as it tells them more about you and your likes and dislikes.

Lasting Power of Attorney (LPA)

LPA can help people who may need someone to act on their behalf.  Two types:

  • Financial decisions – Such as paying bills, arranging repairs to property or even selling a property. You could decide that you want help now or decide that you only want help if you can no longer make these decisions for yourself (capacity).
  • Health and care decisions – For instance where you should live, medical care, what you should eat, etc. This can only start if you can no longer make these decisions for yourself.

When:  Best set up as soon as possible.  If at some point you can no longer make decisions for yourself you won’t be able to then get an LPA for yourself.

How:

  • Yourself – For online information
  • Age UK Sheffield – offer a free 30min advice session with a solicitor. Call 0114 250 2850 or For Information
  • Sheffield Carers Centre – offer a free 30min advice session with a solicitor. Call 0114 272 8362 (10am to 4pm)
  • Citizens Advice Sheffield – For Information or call 0808 278 7820 (10am to 4pm)

Planning Your Hospital Discharge

If you do need to go into hospital and are worried about how you will manage after discharge, speak to the nurse in charge of the ward about this. Depending on the ward you can be referred to the Front Door Response Team (FDRT) or the Transfer of Care team (TOC.) They will assess what is required for you to be safely discharged from hospital.  This might include support from carers, physiotherapists and occupational therapists as well as equipment or adaptations to your home. For information

Planning for a Care Home

Many people with dementia will stay at home throughout their dementia journey but staying in a care home can also be a very positive experience for some people.  So, it can be useful to chat about this as early as possible.  You can decide what would be important to you and maybe even visit a few homes to get a feel for them.

Sheffield City Council has produced a good guide to help you with this:  Guide to residential and nursing care in Sheffield

Do Not Attempt Cardiopulmonary Resuscitation (DNACPR) (also related to CPR)

No matter who we are we should all think about our end-of-life preferences.  A part of this is whether we would like a resuscitation attempt made if this was needed to restart our heart.  No matter what you chose you will continue to receive any other treatment and your healthcare team / GP will give you the best possible care.

Unfortunately, resuscitation (CPR) often doesn’t work.  When CPR is attempted in a hospital, it is successful in restarting the heart and breathing in about 4 out of 10 patients.  However, only about 2 out of 10 patients survive long enough to leave hospital.  Some patients return to normal but many will have long term health problems after CPR.  Most patients never get back the physical or mental health they had before they were resuscitated.  Some may have bruised or broken ribs (occurring during CPR), some have brain damage or go into a coma.  If you decide you do not want a resuscitation attempt made your doctors and nurses will still continue to give the best possible treatment available for your comfort and quality of life.

This guide from Sheffield Teaching Hospitals discusses CPR in more detail:  For Information

When:  Discuss this as soon as possible if this appropriate.  It is best done now rather than at a time of emergency where you might feel pressured to make a decision.  If you would like someone who supports you to make these decisions on your behalf will need a LPA in place before they can do this.

How:  Tell your healthcare team / GP what you would like.  They must follow your wishes.

Who else can I talk to about this?

  • A member of staff involved in your care
  • Your family, friends & carers
  • Organisations – such as Age UK Sheffield,
  • Alzheimer’s Society call 0333 150 3456 (FREE) or For information
  • NHS 111 helpline

Advance Care Planning

Thinking more about the advanced stages of dementia can be useful so that you can decide what you would like or not want:

  • Finding out the different options available
  • Is there anything that you would definitely not want to happen?
  • Is there something you feel strongly about?
  • Do you have any beliefs you want respected?